Anaplastic Oligodendroglioma - I had to ring the oncologist to remind me of the name, as I don't like to dwell on my issue too much....I like to think more about the positive aspects in my life. I do realise that many people with this issue presently touching their life cannot possibly share my complete enthusiasm and my heart goes out to those of you who, unfortunately, are in a more distressing situations.
First diagnosed 6.55am, 24 March 2005, when I was found having a Seizure in the bath....not the cleverest place to be! CT scan later that same day and then a MRI scan the next day, in Harrogate Hospital's shared MRI vehicle*.
I had a 6 week course of Radiotherapy, at Cookridge Hospital, Leeds, with the maximum 'blast' you can have, I think. Not painful at all and it was one of my favourite times of my life, as I REALLY got to know my Dad throughout this period and after the daily treatment we would play a short game of golf, always under light blue sky's.
At some stage 2 nurses decided to tell me I had 2 - 3 years, which I thought was really NICE of them, as I burst into tears thinking about my 11 year old daughter.
I am now taking Epilim and Lamotrigine tablets to help stabilise my seizures.
My main inspiration is my daughter, as I would like to walk her down the aisle...I hope this isn't for some years yet, as she is only 17....and of course this will also mean I have lasted a good while longer myself! Also, when I was first diagnosed, I told my oncologist I wanted to see England play and win the World Cup in 2010. She said I would probably never see that happen....I had to stop and consider what she meant with that statement! Mind you with the debacle in the Summer earlier this year I would tend to agree with her!
The main reference I can give for some inspiration are two Dale Carnegie books 'How to stop worrying and start living' and 'How to win friends and influence people', both of which I have read 10 times, or so, since the age of 14.
* After the initial treatment at Harrogate, I organised a golf day which raised £8,000 toward taking the hospital over its target (think it was £250,000) for the hospital to have its own MRI scanner, rather than the weekly visit of the shared mobile unit.
Dear Lord...the gods have been good to me. For the first time in my life, everything is absolutely perfect just the way it is. So here's the deal, you freeze everything the way it is, and I won't ask for anything more. If that is OK, please give me absolutely no sign. OK, deal.....