Brain Tumour Organisations - Worldwide

1 The Musella Foundation - Virtual Trials
The Musella Foundation For Brain Tumor Research & Information is dedicated to improving the quality of life and survival times for brain tumor patients by using computer technology to streamline the flow of information, organize the brain tumor community and raise money for brain tumor research. The Virtual Trials website is maintained by the Musella Foundation For BrainTumor Research Information.
2 International Brain Tumour Alliance
The International Brain Tumour Alliance (IBTA) was established during the conference of the World Federation of Neuro Oncology held at Edinburgh (UK) in May 2005.

It seeks to be an alliance of the support, advocacy and information groups for brain tumour patients and carers in different countries and also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours.
3 American Brain Tumor Association
The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.
4 National Brain Tumor Society
National Brain Tumor Society (NBTS) is a leader in the brain tumor community, bringing together the best of research and patient services to be a comprehensive resource for patients, families, caregivers, researchers, and medical professionals. They have a national presence, with offices on both coasts and activities and influence around the United States.
5 Tug McGraw Foundation
"Ya Gotta Believe"-- The Tug McGraw Foundation was established by Tug McGraw in 2003 to raise funds to enhance the quality of life of children and adults with brain tumors and their families by stimulating and facilitating research that addresses the physical, social, emotional, cognitive, and spiritual impact of the disease
6 Kortney Rose Foundation
The Kortney Rose Foundation (KRF) is a 501(c)(3) organization that was set up by Kortney's mother as a way to help channel her grief into something positive. Her hopes are to make a difference, in Kortney's name, in the fight to find better treatments and ultimately a cure for pediatric brain tumors
7 Charles Warren Brain Tumour Awareness Foundation
Their mission is to significantly raise awareness of the disease of brain tumors so that a cure can be found more quickly.
8 The Brad Kaminsky Foundation
The Brad Kaminsky Foundations mission is to:
Raise Awareness of Brain Tumors and Raise Funds for Research so that Effective Treatments and Ultimately, A CURE, may be found. We are also dedicated to providing support and resources to those affected by this horrible disease, and will work with other organizations for the betterment of all patients and families so as to bring about a cure as quickly as possible.
9 Hope With Support


HOPE With Support, Inc., a non-profit organization, was organized in November of 2007 by a group of dedicated professionals, friends, family and a brain tumor survivor, Sandra Wyatt, to raise brain tumor awareness and provide support for people with brain tumors, both newly diagnosed and survivors, their families, and caregivers on the Delmarva Peninsula, including the states of Maryland, Delaware and Virginia. HOPE With Support is dedicated to "Helping Others by Providing Encouragement". HOPE With Support was incorporated on November 6, 2007
10 Brainlife
The purpose of BrainLife is to collect and offer to brain tumor patients, caregivers and medical/health professionals, references to the latest published medical resources in the field of brain (and other CNS) tumor research and treatment.
11 Adult Brain Cancer Support Association
The ABCSA is located in South Australia and is focussed on giving support, encouragement, help and guidance to adults diagnosed with brain cancer, their families, friends and carers.
12 Alinoe
Alinoe (Association Lilloise de Neuro-Oncologie) is a patient-oriented organisation providing information and support to brain tumour patients and their families principally in the Lille area of northern France
13 Braiin Tumour Foundation of India
A support group for patients and doctors.
14 Students Supporting Brain Tumor Research
Students Supporting Brain Tumor Research (SSBTR) was founded in 2002, shortly after three students, from the Paradise Valley School District, died from brain tumors. When research pointed out that, other than leukemia, this particular disease was the number one cancer killer of teenagers, a decision was made to do something about it.
15 Get Your Head in the Game
16 Unlocking Brain Tumours
Unlocking a mystery, increasing survival and hope
17 The Nick Gonzales Foundation
The Nick Gonzales Foundation for Brain Tumor Research was established in 2007 in honor of Nick, a loving husband, father, son, brother, friend and so much more.
18 The Tommy Detesco Fund
To support cutting edge research and technology to cure brain tumors in adolescents and young adults. The Tommy Detesco Fund will keep the joy alive by helping young adults grow into life changing individuals who do not allow illness to define their life but bear witness to the hand of God in their life.
19 Brain Trust
A community for sharing information and support about brain tumors and related conditions… In May 1993, during her own quest for information and support, Samantha Jane Scolamiero, a brain tumor survivor, developed the first online support group about brain tumors on the Internet called “the BRAINTMR mailing list.” This free, volunteer ran service is an international forum whose membership grew exponentially until 1996 where it reached a plateau of 1400. With the addition of many other groups, the BRAINTMR list serves about a thousand members daily. Members are brain tumor patients, caregivers, health care professionals, and/or researchers; some subscriptions represent extended families, entire face-to-face support groups and renowned research clinics.

A 501c3 organization registered with in the State of Massachusetts. Further information available upon request at info@braintrust.org.
20 Adult Ependymoma
Dedicated to providing information on Adult Ependymomas.