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Join us at one of our Treadmill-a-thons!

  • Friday, 05 March 2010 22:17

Can you donate 30 minutes … or … 1800 seconds … or … 30,000 milliseconds of your time to help us in the fight against brain tumours?

Whilst we know a treadmill isn't exactly the fourth plinth in Trafalgar Square, it does provide a great platform for us to raise awareness of brain tumours between March ( Brain Tumour Awareness month in the UK) and 6th November 2010 (the end of International Brain Tumour Awareness week).

BT Buddies and it's supporters will be holding Treadmill-a-thons up and down the country and 30 minutes of your time is all we are asking you to commit too...though, of course, if you wanted to walk for longer you would be more than welcome!

The details of our first Treadmill-a-thon are:

Location: NeuroSupport Centre, Norton Street, Liverpool City Centre

Dates: 15th March - 19th March 2010

Times: 10am – 4pm each day

We also have events in Norwich, Hillingdon, Manchester and Leeds – dates, times and venues for these events and more details on all our treadmill-a-thons can be found here.

And, if there isn't a treadmill clocking up the miles for brain tumours near you, just contact us and we'll help you arrange an event in your area!

So, what can you do to help us and the brain tumour cause today?

1.Visit our Treadmill-a-thon section here and pass on the link to anyone you think might be able to spare half an hour

2.Email This e-mail address is being protected from spambots. You need JavaScript enabled to view it or call 05601 751226 to find out more, book a slot or arrange a treadmill-a-thon in your local area

Thanks for reading and we hope to see you on a treadmill near us soon! :)

Your BT Buddies,

Natalya and Andrew :)

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It's our birthday!

  • Monday, 01 March 2010 10:00
  • Last Updated ( Monday, 01 March 2010 11:18 )

1st birthday

We can't believe it has been a year since BT Buddies launched!

Firstly, to all who have lost someone dear to them this past year (and beyond) you continue to be in our thoughts. We hope that amongst the sadness you are able to find moments of joy as you remember some of the happier times you shared with your loved one.

We would also like to take this opportunity to let you know, if you or your loved one is currently battling a Brain Tumour, you can find information and support through the BT Buddies website and chat with people in similar situations in our forum. If you can't find what you are looking for on our site please This e-mail address is being protected from spambots. You need JavaScript enabled to view it and we'll do our best to help.

From March 1st 2009 to February 28th 2010, 20,500+ visitors have viewed 6,171 pages, over 100,000 times...here at BT Buddies we feel that our mission to provide a place for people needing up to date and accurate information on high grade brain tumours has been accomplished. However, we aren't going to stop here! Over the coming weeks and months you will see various changes to the BT Buddies website. All, we hope, will make visiting the website, connecting with others and sharing information a lot easier.

With this in mind we have created a page where you can leave a review of BT Buddies. We would love your feedback, all you need to do is CLICK HERE and write your review, by doing so you will help shape the future of BT Buddies.

An important step for us has been taken over the last few weeks, we have registered with the Charity Commission and hope to receive our registered charity number very soon. We are thrilled with all the support we have received and very grateful to everyone that has helped us get to this point. Whilst waiting for our registered charity number we have also applied to the HMRC and we are now able to claim Gift Aid on all applicable donations made to BT Buddies.

What have BT Buddies been up to the last 12 months?

With Hope in Our Hearts previewIn January 2009 BT Buddies asked photographers on DPChallenge.com to help complete a unique project in memory of Andrew's daughter, Rose.

Photographers were asked to shoot their idea of hope during March 2009, brain tumour awareness month (UK), and this inspirational book, 'With Hope in Our Hearts' is the result.

In his introduction for the book, Henry Friedman, Deputy Director of The Preston Robert Tisch Brain Tumor Center wrote “This wonderful book produces images that will help anyone and their family battling a brain tumor and indeed any other medical or even non-medical challenge. I believe all readers will find this to be deeply moving book and an essential ingredient for their own personal quest for health and happiness.”

All Profits from the sale of this book will go to fund various BT Buddies projects.

Fundraisers - We would like to say a HUGE thank you to Becky and Cyril Haggar for all the work they are doing to raise funds for BT Buddies and to help others fighting brain tumours. In 2009, whilst Cyril was recovering from brain surgery for a Meningioma, the couple have raised over £1,000  for BT Buddies!

Along with the fundraising they have also worked closely with us to setup a brain tumour support group in their local area. Hillingdon Brain Tumour Support Groups meets on the last Thursday of every month and new members are always welcome! For further information on where the group is held or if you have any questions please This e-mail address is being protected from spambots. You need JavaScript enabled to view it and we'll get back to you as soon as we can.

International Brain Tumour Awareness Week - In November 2009 BT Buddies helped raise awareness of brain tumours during IBTA week by having awareness displays in locations across the uk. We also sent out a press release, which saw 5 year brain tumour survivor, David Grant, on the front page of a Kent newspaper and various online news websites. You can read more about David and his brain tumour journey here.

2010 Fundraising and Awareness Events:

Click the image above for information on our unique 'Behind The Mask' exhibition.

Walk Around The Coast For Brain Tumours - From 1st March 2010 walking events are being held across the UK to raise awareness of brain tumours. The BT Buddies 'Walk Around the Coast' aims to walk a total of 5,581 miles which is the official distance around the coast of England.

We have a wide range of walking events for people of all fitness levels, the miles people walk at any of these events, or at events you organise yourselves will be added to our total and we hope to hit our 5,581 mile goal by 6th November 2010! Click here or click on the image on the right to find out more!

All miles walked for BT Buddies will be added to the IBTA's annual 'Walk Around the World' total.

 

TREADMILL-A-THONS

Between Monday 1st March 2010 and Saturday 6th November 2010 BT Buddies will be holding treadmill-a-thons across the UK. So far we have treadmills in Liverpool, Norwich, London, Manchester and Leeds and we hope to add a few more venues over the next few weeks!

For further information on our treadmill-a-thons or to book a slot please click here or click the image on the left.

 

Click on the following links for information on these events:

Wirral Coastal Walk - Sunday 23rd May 2010

Pedometer-a-thon - June 2010

Treasure Hunt on Foot - July 2010 (info coming soon!)

London Photography Walk - August 2010 (info coming soon!)

Dave's Bike Adventure - info coming soon!

Brain Tumour Awareness Displays

BT Buddies Projects launching in 2010:


Paediatric BT Buddies

We had hoped to be able to launch the new Paediatric BT Buddies website, for parents, loved ones, teachers and anyone in contact with a child with a brain tumour at the start of March 2010 but, unfortunately, this won't be possible.

Instead we have extended our deadline to 1st November 2010.

If you or anyone you know would like to contribute to the Paediatric BT Buddies website please This e-mail address is being protected from spambots. You need JavaScript enabled to view it and we'll get back to you asap.

Rose's Designs - as many of you know, Rose designed a collection of jewellery as part of her degree course. As a tribute to the hardwork she put in throughout her degree BT Buddies will be launching a selection of replica Jewellery with all proceeds going to BT Buddies. The funds raised through the sale of the jewellery will be used to fund projects like the Coping Better Together course, held in Liverpool by The Walton Centre, for newly diagnosed brain tumour patients, their families, carers and friends.

'I'm a BT Buddy' wristbands will be available through our eBay store in a few weeks time. They will be grey and say 'I'M A BT BUDDY!' on one side and btbuddies.org.uk on the other.

There will be more info on this coming soon so watch this space!

 

One of our biggest projects will be launched later this month but, unfortunately, we can't give you any more information just yet! Everyone at BT Buddies is looking forward to helping children across the UK with this special project. Watch this space (again) for information on the launch events!

2009 saw the rise of social networking and BT Buddies managed to keep up with the pace by starting a facebook fan page and twitter page. You can find each of these by clicking on the following buttons...

Today is also the start of Brain Tumour Awareness month here in the UK and we are encouraging all our supporters to place this badge on their facebook page, twitter page,blog, website and anywhere else you can think of! Send us a link to the page you place it on and we'll add you to our supporters list.

Well, I think we've written enough to keep you going for a while! If you have have any questions or would like further information on anything mentioned here please This e-mail address is being protected from spambots. You need JavaScript enabled to view it and we'll get back to you as soon as we can.

Once again, thank you to everyone that has made all we have achieved this past year possible, here's to the next 12 months and to hopefully helping more people affected by a brain tumour.

Your BT Buddies,
Natalya



Natalya, Andrew and the BT Buddies team
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What do you think of BT Buddies?

  • Wednesday, 24 February 2010 01:22
  • Last Updated ( Wednesday, 24 February 2010 01:44 )
Over the next few weeks we will be making some changes to the BT Buddies website and we would love your input. By clicking on the box below you can leave a review of the current BT Buddies website and the services we provide.

BT Buddies has been created for those seeking information at any stage of the Brain Tumour journey so if there is something in particular you would like to see on the site, or, if you have any thoughts on our Forum area and how we could improve it, please leave us a review. Many thanks in advance for you help with this.


Your BT Buddy,
Natalya



Natalya and the BT Buddies team
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Cancer Research UK and immatics Biotechnologies to trial vaccine for brain cancer

  • Tuesday, 16 February 2010 23:56
  • Last Updated ( Wednesday, 17 February 2010 02:33 )

Cancer RESEARCH UK and Cancer Research Technology - the charity's development and commercialisation arm - have reached a collaboration agreement with immatics Biotechnologies to trial their new treatment vaccine, IMA950, for glioblastoma multiforme (GMB), one of the most common forms of brain cancer*.

IMA950 is the fifth treatment to enter Cancer Research UK's Clinical Development Partnerships (CDP) scheme and the second one to be completed this year**. The CDP programme allows companies to retain the rights to their treatment while enabling the charity to take on its early development work to assess if there is a potential benefit to cancer patients. This is the first treatment vaccine to enter the CDP programme.

IMA950 contains 11 peptides linked to Glioblastoma Multiforme, an aggressive form of Glioma. These peptides encourage the T cells in the Immune System to recognise cancer cells and destroy them. In a phase I clinical trial that will open in the next year, up to 45 patients who have been newly diagnosed with this form of glioma will receive a number of doses of the vaccine, alongside routine surgery, Radiotherapy and Chemotherapy treatments.

The trial, will take place at four hospitals*** across the UK through Cancer Research UK’s Experimental Cancer Medicine Centre network and it will be managed by the charity’s Drug Development Office (DDO).

Under the terms of the partnership, Cancer Research UK will fund the trial.

immatics Biotechnologies will then have an option to further develop and commercialise the drug in exchange for future payments to the charity. If they elect not to, the rights will be given to CRT to secure an alternative partner.

Dr Ian Walker, licensing manager at CRT, said: "We're delighted to have formed this agreement with immatics Biotechnologies. Following rigorous peer-review of the scientific data, Cancer Research UK’s scientific committee decided that the potential of the vaccine should be investigated further and we are very pleased that the company sought the expertise of the charity to develop a potential new treatment."

Paul Higham, CEO of immatics said: "Cancer Research UK is a world-renowned cancer research organisation and we are delighted that through this collaboration we will be able to efficiently move our third therapeutic cancer vaccine into the clinic, highlighting the wide applicability and productivity of our technology platform."

Professor Roy Rampling, who will lead the study at Beatson West of Scotland Cancer Centre at the University of Glasgow, said: "The clinical trial will aim to find out if this vaccine targets and stimulates the patient's immune system to fight the cancer.

Although we’re still planning the trial and are not ready to recruit patients yet, it’s exciting to be working on a possible new way to treat glioma."

Dr Victoria John, head of clinical partnerships at Cancer Research UK’s Drug Development Office, said: "We’re very pleased to be taking on the next stage of this vaccine’s development. This form of glioma is very difficult to treat successfully and we hope this trial will help to establish if the vaccine might offer another viable treatment option for people with this type of cancer."

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Immatics Enters Collaboration with Cancer Research UK to Develop Multi-target Rationally Designed Therapeutic Cancer Vaccine (Immatics Press Release)

  • Tuesday, 16 February 2010 13:44

IMA950 to enter Phase I development for glioblastoma, the most aggressive form of brain Cancer

Tuebingen, February 16, 2010 - immatics biotechnologies GmbH, a clinical-stage biopharmaceutical company developing rationally designed therapeutic vaccines that are active against cancer, today announced it has signed a collaboration with Cancer Research UK for the further development of immatics’ therapeutic cancer vaccine IMA950 in glioblastoma, the most aggressive form of brain cancer. Under the terms of the agreement, Cancer Research UK will sponsor and conduct a Phase I trial of IMA950 to be carried out at leading Glioma research centres in the UK via its Drug Development Office. immatics will supply the drug IMA950 for the trial and also undertake immunomonitoring in the treated patients.

After the completion of the study, immatics will have an exclusive first right to take a license to the data for further development of IMA950. No financial details were disclosed.

Paul Higham, CEO of immatics said: “Cancer Research UK is a world-renowned cancer research organisation and we are delighted that through this collaboration we will be able to efficiently move our third therapeutic cancer vaccine into the clinic, highlighting the wide applicability and productivity of our XPRESIDENT™ technology platform.”

Dr Victoria John, head of clinical partnerships at Cancer Research UK’s Drug Development Office, said: “We’re very pleased to be taking on the next stage of this vaccine’s development. This form of glioma is very difficult to treat successfully and we hope this trial will help to establish if the immatics vaccine might offer another viable treatment option for people with this type of cancer.”

IMA950 is a therapeutic cancer vaccine generated through immatics’ proprietary XPRESIDENT™ technology. It consists of 11 tumour-associated peptides (TUMAPs) which the immatics platform selects on the basis of their natural presentation by tumour tissue, immunogenicity and their relevance to tumour function. This unique approach to rationally designed therapeutic vaccines which are a combination of multiple, highly relevant tumour peptides is at the core of all immatics’ clinical programmes.

-/ 1002 immatics Enters Collaboration with Cancer Research UK to Develop Multi-target Rationally Designed Therapeutic Cancer Vaccine (PDF, 112 KB)

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