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1 - 2 weeks prior to death

  • Sunday, 08 November 2009 02:08

Motor
  • Often, completely bedridden
  • Younger patients may still be stubborn about getting up, though requiring assistance
  • May hold on to the bedrail or to a caregiver's hand, hair, or clothing very tightly

Urinary/Bowel
  • Usually incontinent by now
  • May continue to express urinary urgency, without producing anything

Cognitive/Personality/Speech
  • May find loud or multiple sounds irritating
  • After waking, seems confused for several minutes
  • Staring across the room, up toward the ceiling, or "through" you
  • May look at TV but seem not to be watching it
  • May make mention of "getting ready" or "having to go," without knowing where
  • May refer to travel, packing, or gathering clothes
  • May talk about tying up loose ends (specific to the individual)
  • May mention seeing visions in the room (I've heard everything from horses to angels to deceased mothers-in-law)
  • Communication seems to take more effort and makes the patient winded or tired
  • Doesn't initiate conversation as much, though still giving brief responses to questions
  • Agitation may build
  • Likes to keep the primary caregiver in sight and may panic when he or she is not in the room
  • May seem especially irritable with large groups of visitors or young children (probably because understanding conversations requires more work)

Physical
  • Sleeping "almost all the time"
  • Can sleep even in a room full of activity and noise
  • Harder to rouse from sleep
  • Brief, scattered periods of alertness
  • Increased difficulty swallowing pills or liquids
  • Vision deficits increase
  • Eyes may look glassy, milky, cloudy, like "elderly eyes" or "fish eyes"
  • May reach toward the head during sleep (may indicate headache pain)
  • May have a distended abdomen
  • Vital signs are likely to still be good
  • May begin to have need for pain management