Meningioma

Name: Heather Taylor-Nicholson

Tumour Type: - Petrous Meningioma

Grade: 1 (' benign')

Bio - I'm a 50 year old who was diagnosed with having a 'benign' meningioma last year (Nov 5th 2010) during investigations for vertigo that had caused me to collapse at work in April 2010. I have been told that this is only 'incidental' and not the cause for the vertigo by an ENT surgeon. However, no other diagnosis has been offered apart from 'poor vestibular return' and the only treatment apart from the 'Epley' given by my GP to ease the more acute symptoms, was a booklet on vestibular exercises as I still feel unsteady and have mild balance issues.

Sadly though, whatever the cause I have lost my job as a Staff Nurse at our local hospital as I am not fit nor safe enough to work in any clinical areas, and have subsequently had to let my registration lapse as for the same reasons. I am currently unemployed and hoping to God I can get my NHS pension early on grounds of ill health, otherwise I lose my home. Right now I am going through the nightmare of having to deal with benefits claims etc which is not fun as most of you here will know.

I'm not sure what it is my blog can add but I hope it will be insightful to those who read it and who do not mind a cynical 50 year old ex-healthcare professional having a major rant..LOL!! I also run a Facebook page called 'Cornwall Headliners Brain Tumour Support Page' as there is nothing in Cornwall in the way of lcoal support groups. I feel that we are the 'forgotten' county in terms of support and treatment options, espcially with aftercare and support for those recovering from treatment. However please feel free to visit and share your experiences.

Blog Name - Meningiomaheadstart

URL - http://www.meningiomaheadstart.blogspot.com/

Name: Lesly

Tumour Type: Meningioma

Bio:  I live in one of the most beautiful places in New Zealand with my husband and our two cats. I like to paint and draw, and work in soft pastel, oil pastel or acrylics.

Blog Name: Going to my head

URL: http://goingtomyhead.blogspot.co.uk/

Name: Janet

Tumour Type: Meningioma

Bio:  I am a 30 something stay at home mum. Before that I was an occupational therapist. Our beautiful girl was born after 6 rounds of IVF, and then our little boy arrived two years later after more IVF and a difficult pregnancy. Life has taken another turn when I was diagnosed with a brain tumour. This is my ramblings about life and the challenges we face.

Blog Name: One banana, two banana, three banana more?

URL: http://morebananas.blogspot.com.au

Name: Lynda

Tumour Type: Meningioma

Bio:  I am a Brain Tumour Survivor. Diagnosed in 2006 with a Benign Meningioma which was surgically removed successfully. Author of the Ebook - My Brain Tumour. I live in Cyprus now with my husband and life is certainly good. My life was rocked when I was diagnosed and I was scared but I am an optimistic person and believed it could be overcome.

Blog Name: My Brain Tumour

URL: http://lynda-mybraintumour.blogspot.co.uk/

Name: Eric Glavez

Tumour Type: Meningioma

Bio: I'm just a regular guy that had a brain Tumor and wants to do something positive with it. This web site is dedicated to my unique journey over the last year. I'm a 31 year old physical therapist in beautiful San Diego, California. I was diagnosed with a golf-ball sized brain tumor in September 2005. I had brain surgery a month later to remove it. It took me almost 1 year to fully recover. I've always believed that things happen for a reason. I really feel like all my life experiences helped me to deal with this crushing diagnosis. I have led a very interesting life thus far, but I still have a lot of things I need to do. After the surgery, I was receiving rehab at the hospital where I used to work. The people I used to work side by side with were now treating me as a patient! Please take your time browsing this site to learn more about my wild ride through this unique experience.

Blog Name: They Call Me 'Glavez'

URL: http://www.ericgalvezdpt.com/

Name: Dawn

Tumour Type: Meningioma

Bio: Since the unexpected discovery and removal of a right sided meningioma brain tumour in November 2008 Dawn with a Difference has emerged. Mind the Gap A-Z will sprinkle your brains with my journey.

Blog Name: Mind The Gap A-Z

Blog Link: http://mindthegapa-z.blogspot.co.uk/

Tumour Type: Meningioma

Bio: This blog is about navigating a glitch in the road. On Dec 2nd 2008 I found out I had an Olfactory Groove Meningioma, a benign tumour on the meninges — the membranes that surround your brain and spinal cord.

The little bugger was removed surgically by Craniotomy on Jan 28th 2009. Recent times have led me to spend a lot of time with my GP, neurosurgeon, neurologist, naturopath, and osteopath, and this is an account from diagnosis through recovery.

I hope this provides some insight to family, friends, and those who are embarking on the same journey. In my own insignificant way, I'd like to raise awareness of meningiomas and help in early detection, if just for one person.

Blog Name: Me, Myself and Meningioma

URL: http://memyselfmeningioma.wordpress.com/

Name: Tina

Tumour Type: Meningioma

Bio:  Originally created to share news around our craniotomy adventure, the focus of this blog has now shifted to the continuing progress of recovery, general thoughts on life and staying in touch with our great community of friends.

Blog Name: Tina's Adventure

Name: Jackie Ng

Type of Brain Tumour: Meningioma

Bio: Hi. i m into my 11th anniversary after craniotomy meningioma and i maintained a blog about before and after my experience with this benign brain tumour .

Blog name: Jackie's Journey

Blog link: http://www.jackie-nak.blogspot.com/