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Meningioma

  • Tuesday, 29 September 2009 16:13
  • Last Updated Monday, 06 June 2011 19:22

Name: Jackie Ng

Type of Brain Tumour: Meningioma

Bio: Hi. i m into my 11th anniversary after Craniotomy meningioma and i maintained a blog about before and after my experience with this benign brain tumour .

Blog name: Jackie's Journey

Blog link: http://www.jackie-nak.blogspot.com/


Name: David Bond a.k.a. Bondy

Type of Brain Tumour: Aggressive/benign (meningioma)

Grade of Brain Tumour: Unknown, although it was the same size as a tennis ball and attached outside the front left lobe of my brain

Short Bio: A New Zealander based in Amsterdam who found out that he had a brain tumour the size of a tennis ball after waking up one morning with a headache so intense that he could not stand up. After a 12-hour operation 6 days later and 6 weeks of daily Radiotherapy, Bondy completed the Monaco Ironman triathlon 9 months later in 6 hours 52 minutes.

Blog name: Bondy 4 Brains


Name: Heather Taylor-Nicholson

Tumour Type: - Petrous Meningioma

Grade: 1 ('benign')

Bio - I'm a 50 year old who was diagnosed with having a 'benign' meningioma last year (Nov 5th 2010) during investigations for vertigo that had caused me to collapse at work in April 2010. I have been told that this is only 'incidental' and not the cause for the vertigo by an ENT surgeon. However, no other diagnosis has been offered apart from 'poor vestibular return' and the only treatment apart from the 'Epley' given by my GP to ease the more acute symptoms, was a booklet on vestibular exercises as I still feel unsteady and have mild balance issues.

Sadly though, whatever the cause I have lost my job as a Staff Nurse at our local hospital as I am not fit nor safe enough to work in any clinical areas, and have subsequently had to let my registration lapse as for the same reasons. I am currently unemployed and hoping to God I can get my NHS pension early on grounds of ill health, otherwise I lose my home. Right now I am going through the nightmare of having to deal with benefits claims etc which is not fun as most of you here will know.

I'm not sure what it is my blog can add but I hope it will be insightful to those who read it and who do not mind a cynical 50 year old ex-healthcare professional having a major rant..LOL!! I also run a Facebook page called 'Cornwall Headliners Brain Tumour Support Page' as there is nothing in Cornwall in the way of lcoal support groups. I feel that we are the 'forgotten' county in terms of support and treatment options, espcially with aftercare and support for those recovering from treatment. However please feel free to visit and share your experiences.

Blog Name - Meningiomaheadstart

URL - http://www.meningiomaheadstart.blogspot.com/

More coming soon!